Adaptação transcultural e validação de conteúdo da Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS) para o contexto brasileiro

Abstract

Introduction: Stigma is a discredit or strong disapproval of personal characteristics, attributed to a person who has an undesirable difference that goes against the standards set by society. Objective: To perform cross-cultural adaptation of the Stigma Scale Perceived by People with Sickle Cell Disease to the Brazilian context. Methodology: This was a cross-cultural adaptation of a scale that measures the stigma perceived by people with sickle cell disease in relation to general practitioners, physicians, nurses and family members. The study included 14 individuals as judges with knowledge in the subject studied and 30 people with sickle cell disease constituted the target population to assess the relevance, clarity and representativeness of the stigma construct in the instrument being adapted. The transcultural adaptation of the instrument followed the steps: translation, retranslation, evaluation of the judges committee, revision of the instrument, discussion with the author, approval of the first version, application in the population, reassessment by committee of experts and approval of the final version of the instrument. After analyzing the specialists and the target population, the Percentage of Concordance of each item was calculated and those with percentages lower than 80% were re-evaluated by the specialists. Results: In the evaluation of the instrument by the expert committee, 8 items had percentages lower than 80% for pertinence and 11 for clarity, being these, being necessary to reformulate the writing to improve the understanding of the target population, according to recommendations in the literature. The version evaluated by the target population showed that the instrument was clear and adequate for the understanding of people with DF, however, it was suggested to modify the graduation of responses from 6 to 3. We emphasize that some items, even presenting a percentage of agreement, 80% were rewritten to facilitate understanding of people with DF. Conclusions: The SCD-HRSS cross-cultural adaptation process represented an important step in the field of health, since after the validation of the instrument, it could be used for health professionals and public health researchers to learn about the experiences of stigma of people with FD in different social relationships and how it affects the quality of life and health of these individuals. In addition, it can contribute to a better understanding of the phenomenon and to subsidize new studies in the area.